My Story

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My name is Medora Frei and I’m a graduate of Concordia College Moorhead, MN.

Bismarck, ND (with its frigid winters and colorful summers) is home. I’m guided by a passion for stories and people. In 2013 I was diagnosed with Cystic Fibrosis (CF).

I believe in living an inspired life. Coffee drinking, traveling, and having adventures are some of my favorite things. This Hope in Focus blog platform is a space for sharing, growing, loving, and accompanying.

I started a program called Hope in Focus in 2016 as part of the Phillips Scholarship Program designed to use art and photography as a creative outlet for children with chronic conditions.

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4 Replies to “My Story”

  1. Hi Medora, nice to meet you. What a truly courageous and wise person you are. It really is nice to meet you, even only in cyberspace. You have been forced to learn some of the hard truths of life very young, and if this blog is any indication you are learning them with much grace and dignity. Kudos. You go girl!
    I know it’s been nearly 2 months since you pushed the follow button on our blog. Sorry I’ve taken so long to get back to you. Anyway thank you so much for following. I hope you enjoy the stories of our journey. And don’t be a stranger – come on over and join the conversation.
    Hope you had/are having an absolutely *awesome* time in Antigua!
    Cheers
    Alison

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  2. Hi Alison, thank you so much for your kind words. They are so appreciated! Antigua was absolutely wonderful- I hope to have a post up soon with more details from the trip.
    It’s been a joy to follow your blog so far and I look forward to following your journey. I hope your summer is off to a wonderful start, thank you so much again! And thank you for lifting others up, you truly made my day.
    -Medora

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  3. Hi Medora! My name is Lauren and I’m a first time mom who just found out that my daughter has cystic fibrosis. It was detected via newborn screen when she was 3 weeks old, about 3 weeks ago. I was wondering, what mutations do you have for cystic fibrosis? I’m happy to hear that you’re doing so well and can only hope for the best for my daughter as well.

    Thank you!

    Liked by 1 person

    1. Hi Lauren! Nice to “meet” you. I’m sorry to hear about your daughter, I hope she is doing well and that everything is going alright. So I have the f508 and R347H mutations, meaning I have pancreatic insufficient CF. It also affects my sinuses, just not the lungs.
      I admire your strength and perseverance and will be thinking about your family. Thanks for sharing, hope all is well! -Medora

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